There are a many worthwhile resources available for Canadian families with special needs or disabilities. Sometimes different organizations provide similar types of programs which can be combined to cover a greater amount of actual costs, for example, funding for assistive devices is available from the federal government, some provincial governments, Muscular Dystrophy Canada and March of Dimes. Navigating through the various resources will take both time and effort.
Canadian Government Resources
Myotonic Dystrophy patients and their families may be eligible for a variety of federal and provincial programs. Eligibility may vary by age, special needs, income levels, province of residence, etc. Search the following pages to help locate government programs of interest. At the top of each page, be sure to set the correct search area for Federal Programs, or else the province of residence to locate provincial programs.
Navigate quickly to the programmes you may be eligible for by answering a few questions.
Locate the following programmes in your province :
Health and Dental Care (includes assistive devices)
Mental Health, Counselling, and Addictions
Prescription Drug Coverage
Display all programs for 'Health concerns'
Locate the following programmes for people with disabilities in your province:
Financial Assistance, Employment, Education and Training
Housing, Health, Participation and Safety
Display all programs for 'I am a person with a disability'
Locate types of services available to those with disabilities
Locate services specifically for persons with disabilities
Locate programs by province
Federal Programs of Special Interest:
Taxes and Disabilities
There are a number of tax credits, deductions and rebates available to disabled taxpayers.
Canada Pension Plan Disability Benefits (CPP)
Canada Pension Plan (CPP) Disability Benefits provide a monthly taxable benefit to contributors who are disabled and to their dependent children.
Disability Tax Credit (DTC)
The DTC is a non-refundable tax credit used to reduce income tax payable for eligible individuals.’’
Child Disability Benefit (CDB)
The (CDB) is a tax-free benefit of up to $1600 per year for low- and modest-income families caring for children under the age of 18 who have a severe and prolonged mental or physical impairment.
Registered Disability Savings Plan (RDSP)
The Registered Disability Savings Plan (RDSP) helps Canadians with disabilities and their families save for the future. ( Canadian residents under age 60)
Residential Rehabilitation Assistance Program for Persons with Disabilities (RRAP — Disabilities)
Canada Mortgage and Housing Corporation (CMHC) offers financial assistance to allow homeowners and landlords to pay for modifications to make their property more accessible to persons with disabilities. These modifications are intended to eliminate physical barriers, imminent safety risks and improve the ability to meet the demands of daily living within the home.
This guide is for people with medical expenses or impairments in physical or mental functions and anyone supporting these people. It gives information on eligible medical expenses, services we provide for people with impairments in physical or mental functions, as well as other information on income tax, excise tax, customs, and the goods and services tax/harmonized sales tax (GST/HST).
Opportunities Fund for Persons With Disabilities
The Opportunities Fund for Persons with Disabilities program offers funding for local, regional, and national projects. Through funding for organizations, the Opportunities Fund for Persons with Disabilities program helps people with disabilities prepare for, obtain and maintain employment or self-employment.
Persons with Disabilities Online
Links to services and information for persons with disabilities, family members, caregivers and all Canadians.
March of Dimes
March of Dimes Canada offers a variety of programs and services to maximize the independence, personal empowerment and community participation of people with disabilities. We serve more than 50,000 children and adults with disabilities every year, with programs such as Attendant Care, Acquired Brain Injury services, Home & Vehicle Modification, Assistive Devices, Employment support, and much more.
March of Dimes Assistive Devices Program
Muscular Dystrophy Canada
Muscular Dystrophy Canada is a not-for-profit organization dedicated to improving the lives of more than 50,000 Canadians affected by over 150 types of neuromuscular disorders.
Our vision is to find a cure for neuromuscular disorders in our lifetime. Until then, our mission is to enhance the lives of those with neuromuscular disorders by providing support and resources and funding research towards a cure.
To access Muscular Dystrophy Canada’s Mobility Equipment Program, it is necessary to register with MDC. Muscular Dystrophy Canada recommends involving them early in the process once you have identified a need for mobility equipment. They cost-share with other community agencies across the country. When resources do not cover the full cost of equipment or it is not covered by the program, occupational therapists can usually offer suggestions of other funding sources
Dental Care: Financial Assistance for Children
Grottoes of North America-Humanitarian Foundation
The Grottoes of North America Humanitarian Foundation is a 501 (c) (3) nonprofit organization that brings “Special Smiles” to children with special needs (up to age 18) by providing them much-needed dental care. The program helps cover the costs of dental treatment beyond the coverage of insurance programmes, including orthodontics, hospital and anesthesia costs, when needed, for children with cerebral palsy, muscular dystrophy and related neuromuscular disorders, those with mental retardation, and organ transplant recipients.
|Name: Robert Black
Grotto Name: Van Zor
Phone: 604 925 1525
City: Vancouver BC
Zip: V6P 4
|Name: Colin Maurice
Grotto Name: Rani Ghar
City: Whitby Ontario
Zip: L1R OH2
|Name: Shuard Sutherland
Grotto Name: Xella
Phone: 519 685 1243
City: London, Ontario
Zip: N5Y 1
Other Resources of Interest
The Canadian Abilities Foundation
Web site for job seekers to gain exposure to employers who are committed to diverse work places.
Myotonic Dystrophy Research Funding
The Rachel Fund for Myotonic Dystrophy
With a donation from Tribute Communities, Muscular Dystrophy Canada established the Rachel Fund for Myotonic Dystrophy in 2006. In 2009, two additional grants were awarded through the Rachel Fund. This money funds research to help develop new therapies.
Registered Canadian charity committed to the development of meaningful treatments for orphan diseases, particularly myotonic dystrophy.